ASTHMA & ALLERGY FOUNDATION PARTNERS WITH SINOPTIM

ASTHMA & ALLERGY FOUNDATION PARTNERS WITH SINOPTIM | RESQRINSE TO PROVIDE KID-FRIENDLY NASAL RINSING DEVICES FOR INNER CITY YOUTH

April 20, 2019 

ST. LOUIS, MISOURI –Asthma and Allergy Foundation of America (St. Louis Chapter), the nation’s oldest and leading allergy charity, announced this weekend that they have partnered with Sinoptim, LLC to provide the entirely new, kid-friendly ResQRinse nasal irrigation device as part of the BREATH program. 

The BREATH (Bridging Resources to Encourage Asthma Treatment and Health) program was developed by the St. Louis chapter of AAFA to serve inner city St. Louis area children. The program provides life-saving medications, equipment, education and support to deal with asthma and allergies.

According to AAFA, “The best way to prevent allergy symptoms and limit your need for allergy medicine is to avoid your allergens as much as possible…You can reduce your symptoms to airborne allergens by washing out your nose daily with a nasal saline rinse.” 

Marjorie Moore, Executive Director of AAFA St. Louis Chapter, stated, “We are very excited to add the ResQRinse nasal irrigation device to the donated products that are a part of the BREATH packages distributed in the St.Louis area. AAFA has long been a proponent of daily saline nasal rinsing and we know that it can help reduce allergic reactions. ResQRinse offers a new, easy, and fun alternative for children to maintain a nasal rinsing regimen.” 

“We are extremely proud to be able to join with AAFA-St. Louis Chapter in making the ResQRinse available to children in need,” said Dana Willett, President of Sinoptim, LLC. “Nasal irrigation can often be challenging for children to master and continue using due to special technique and/or the choking and gagging caused when using other rinsing devices. ResQRinse changes that experience by greatly simplifying the sinus rinsing process and has been shown to make a true difference for those suffering from sinus allergies.” 

Sinoptim LLC was founded in 2017 in Longmont Colorado to focus on sinus health. ResQRinse is the company’s initial product, developed by Stephen Chandler, MD, ENT, to enable greater patient compliance with prescribed nasal rinsing. The ResQRinse device utilizes a Nasal Lockä technology to close off the back of the throat while rinsing and eliminate drainage of rinsing solution down the back of the throat. 

AAFA, a not for profit organization founded in 1953 is the leading patient organization for people with asthma and allergies, and the oldest asthma and allergy patient group in the world. Since 1981 the Asthma and Allergy Foundation, St Louis Chapter has helped thousands of local children and families manage and cope with asthma and allergic diseases. Together with donors, AAFA-STL helps low income parents cover the cost of expensive medicines and provides education on asthma and allergies. 

For More Information: 

Asthma and Allergy Foundation of America – St. Louis Chapter: aafastl.org/ 

Asthma and Allergy Foundation of America: aafa.org/ 

ResQRinse | Sinoptim: https://resqrinse.com/ 

ASTHMA EDUCATION & HEALTHY HOME ASSESSMENT PROGRAM

ASTHMA EDUCATION AND HEALTHY HOME ASSESSMENT PROGRAM IMPLEMENTED IN MISSOURI STATEWIDE

ST. LOUIS, MO (2/3/2017)— The Asthma and Allergy Foundation of America, St. Louis Chapter (AAFA-STL) is proud to release that the MO HealthNet Division, Department of Social Services in Missouri, announced the implementation of a statewide asthma education and healthy home assessment program for high-risk children with uncontrolled asthma. It is estimated that 1 in 10 children has asthma in the United States, and in some Missouri areas, that number is high as 1 in 5 children.

“We are very excited for the implementation of this law statewide. It will improve the lives of thousands of children who deserve education about living with their chronic illness,” says Joy Krieger, Executive Director of AAFA-STL. “In addition, many of these children live in toxic homes which make them sick and this will reduce those barriers.” 

Originally signed into law in 2014, a $500,000 line item in the state’s budget, which would allow for a $2 million federal match, has been finally approved. This measure has been a key policy initiative of AAFA-STL’s Public Policy Committee. This is the second legislative win for AAFA-STL, who successfully aided in passing MO House Bill 1188 in 2012, which allows schools throughout Missouri to stock asthma rescue medication through our RESCUE Program. RESCUE is now implemented in 52% of schools statewide. http://aafastl.org/RESCUE

About Asthma and Allergy Foundation of America, St. Louis Chapter
With 36 years of service to the St. Louis community, AAFA-STL continues to help local underserved and uninsured children with their asthma and allergy medications, educates families, schools, and nurses about these conditions, and advocates for policies that will keep our community healthy. The organization is a proud member of the United Way of Greater St. Louis.

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RESPONSE TO 400% EPIPEN® PRICE INCREASE

ASTHMA AND ALLERGY FOUNDATION OF AMERICA, ST. LOUIS CHAPTER
ISSUES RESPONSE TO 400% EPIPEN® PRICE INCREASE

ST. LOUIS, MO – With the steady increase in food allergies nationwide, The Asthma and Allergy Foundation ofAmerica, St. Louis Chapter (AAFA-STL) is expressing deep concern over the 400% increase in the cost of a popular epinephrine auto-injector.  EpiPen® is the predominantly-prescribed epinephrine auto-injector on the market, which can thwart serious allergic reactions when injected into the thigh.  AAFA-STL reports that 1 in 5 of the client families served this year have indicated a medical need for the medicine.

“With the sharp price surge for this life-saving medication, we have a growing concern for our client families and the allergy community at large,” said Joy Krieger, Executive Director, Asthma and Allergy Foundation of America, St. Louis Chapter.  “Food allergies are now the #1 health concern from school nurses in Missouri; while public schools have access to free EpiPens® through 2016, families undeniably need to be equipped with the medicine outside of the school setting.” 

A current petition to Congress addressing the EpiPen® price increase, which AAFA-STL supports, can be found at http://www.petition2congress.com/20720/stop-epipen-price-gouging/.

About Asthma and Allergy Foundation of America, St. Louis Chapter
With 35 years of service to the St. Louis community, AAFA-STL continues to help local underserved and uninsured children with their asthma and allergy medications, educates families, schools, and nurses about these conditions, and advocates for policies that will keep our community healthy. The organization is a proud member of the United Way of Greater St. Louis and Variety the Children’s Charity.

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AAFA-STL's Joy Krieger Speaks at "Every Student, Every Day" Conference; Addresses Asthma and Chronic Absenteeism

Asthma is the #1 health condition that accounts for missed school days.  In response to a recent article on absenteeism in schools in the region from the St. Louis Post-Dispatch (Not in class: Chronic absenteeism a problem throughout region's schools, June 22, 2016), it is imperative to understand that this chronic (yet manageable) disease is an underlying cause for thousands of hours of missed school.

In addition to being the #1 health-related reason for missed school, asthma rates are two times the national average in St. Louis, and asthma is the #1 reason kids visit the ER and go to the hospital. Community efforts to combat these trends are strong and numerous, with organizations like the Asthma and Allergy Foundation of America, St. Louis Chapter (AAFA-STL) working diligently to address the problem head-on, through legislative action and direct services to the community.  In fact, the organization just presented alongside Department of Health and Senior Services at a Washington D.C. conference directed at interventions put into place to combat chronic absenteeism across the country.

Missouri was FIRST in the country to pass legislation (HB 1188 in 2012) which authorizes a school nurse/other trained employee to stock and administer life-saving asthma rescue medicine to any child experiencing an asthma emergency in the school setting, and is currently just one of four states to pass such a law. Because of this, AAFA-STL's RESCUE program has seen a sizable increase in the number of schools served in the area, by providing assistance with asthma rescue medicine, durable medical equipment, education and support.  In fact, over the past two years, 82.4% of kids who were treated with a piece of asthma equipment provided by AAFA-STL (in the school setting)  were able to return to the classroom. 

Although the treatment of asthma is multi-faceted, it is crucial to involve schools and educators in the conversation.  Thanks to programs and legislation that directly impact how schools can be involved in helping children manage this disease, it is hopeful that a decrease in absenteeism among students will prevail.   

Joy B. Krieger, RN, MA

Executive Director

ASTHMA AND ALLERGY FOUNDATION OF AMERICA, ST. LOUIS CHAPTER ANNOUNCES FIRST-EVER RISING LEADERS CLASS

ST. LOUIS, MO – The Asthma and Allergy Foundation of America, St. Louis Chapter (AAFA-STL) announced its inaugural 2016 Rising Leaders class, consisting of a diverse group of young professionals in the region.  The seven individuals selected for the program will be working closely with AAFA-STL’s development team and board committees to offer a new perspective to AAFA-STL leadership.  Additionally, the inaugural class of Rising Leaders will have the opportunity to be mentored by AAFA-STL board members and will learn about non-profit operations and leadership. 

Rising Leaders is a select group of energetic and collaborative individuals who are passionate about healthcare, interested in making an impact in the St. Louis asthma and allergy community, and excited to learn about the non-profit space. The mission of the Rising Leaders program is “to become the next generation of leaders who impact the asthma and allergy community through service, collaboration and innovation.” 

The 2016 Rising Leaders Class:

Amit Bery, MD – Resident Physician, Barnes Jewish Hospital

Justin King – Clinical Research Program Manager, Washington University School of Medicine

Victoria Ly – Student and Medical Scribe, Washington University in St. Louis (Public Health)

Megan Salkeld – Quality Improvement Coordinator, Queen of Peace Center

Neem Serra – Software Developer, Asynchrony

Jamie Simpher – Copywriter, 2e Creative

Ruby Varghese – Student, St. Louis University (Public Health)

"We are very excited to see the ideas that will come out of this inaugural group of Rising Leaders, which will help our team at AAFA-STL find new ways to further fulfill our mission and better serve asthma and allergy clients in the Greater St. Louis area,” said Abby Cohen, Co-Founder of Sparo Labs and Rising Leaders Chairperson. 

More information can be found at aafastl.org/risingleaders.

Are you (or is someone you know)...

Energetic and collaborative-minded? Passionate about health care initiatives? Interested in making an impact in the St. Louis asthma and allergy community? Excited to contribute to a leading non-profit?!

Apply NOW for AAFA-STL's Rising Leaders Program!

As a Rising Leader, you will:

• Access behind-the-scenes operations of a non-profit 
• Receive mentorship from current AAFA-STL Board members 
• Shape the Rising Leaders Program for future classes of leaders 
• Bring a new perspective to AAFA-STL leadership and committees 
• Help AAFA-STL fulfill its mission and execute its strategic plan 

Don't just take our word for it...
"As a St. Louis med-tech entrepreneur, I am proud to be involved in such an innovative, non-profit organization that is dedicated to helping St. Louis children breathe better. AAFA STL is constantly evaluating new ways to further fulfill their mission. The Rising Leader Program is a selective group of young professionals that will bring a new perspective to the organization and have the opportunity to be exposed to the board-level operations of a growing non-profit organization.”
-Abby Cohen, Co-Founder of Sparo Labs and Rising Leaders Chairperson

Applications will be accepted through 5pm on Monday, February 29!

Q's?: Email or call Amy Trapp
314-645-2422 x 6Apply: aafastl.org/risingleaders

Call to Action: Urge Gov. Nixon to Release Asthma Funding!

Missouri Governor Jay Nixon just announced that $46.1 million from Missouri's budget is being withheld, which includes $400,000 for asthma education and home assessments for high-risk asthma patients in the state (Missouri is the FIRST STATE to have passed legislation of this nature!)

We ask that you take a few minutes of your time to call or write Governor Jay Nixon and the MO HealthNet Director to voice your concern over this lost funding (other key contacts are also linked below).  Please see letter/talking points below and copy and paste into an email or letter, or voice your concern about this issue in a phone call (*remember to customize letter greeting for each separate contact!)

Collectively, we have and will continue to make our voices heard. Thank you for your advocacy and for helping a child breathe easier!

Governor Jay Nixon
P.O. Box 720, Jefferson City, MO 65102
573-751-3222
Email Form

Dr. Joe Parks
MO HealthNet, 615 Howerton Court Dr., PO Box 6500, Jefferson City, MO 65102-6500
573-751-3425
Joe.Parks@dss.mo.gov

Additional key lawmakers who may be contacted about this issue

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Dear Governor Nixon OR Dr. Parks OR Name of Legislator:

I am requesting your urgent attention to release critical funding regarding the $46.1 million budget withholding announcement. Specifically, I am concerned about the withholding of $400,000 for asthma services (HB 11.528), which would have allowed for Medicaid reimbursement to practitioners across the state who perform asthma home assessments and education for Missouri's most vulnerable populations with asthma.

Without this funding, Missouri will lose out on an estimated savings of $1,500 per patient, annually, and other expected health outcomes including decreased emergency room visits, decreased school absences and fewer work days missed by parents.  Additionally, without the funding from the Missouri budget, the state will not be eligible for a $1.2 million federal match for these reimbursements.

As you are aware, Missouri is the only state to have passed legislation directly in response to the Center for Medicare and Medicaid Services rule change 42 CFR 440.130(c).  This allows practitioners to provide and be reimbursed for furnishing preventive services for asthma patients outside of the clinical setting.

 

In Missouri, asthma is the No. 1 reason why children are hospitalized, visit the ER and miss school days, and annually, asthma hospitalizations cost the state approximately $100 million (this figure does not include the impact and cost incurred by lost work and school days).  

 

This landmark appropriations bill had put Missouri on the national map for providing cutting-edge asthma care, and I urge you to reinstate this important funding, which will more than pay for itself within the first year of its implementation.

Thank you for time and consideration of this important health policy issue.

Call to Action -- Ensure optimized asthma care in Missouri!

Just last month, Governor Nixon signed a budget bill into law (HB 2011.528) that allows for qualified practitioners in the State to provide and be reimbursed for providing asthma education and home assessments to high-risk children with severe asthma.  We thank everyone who wrote to the Governor, legislators and other policymakers about improving asthma care in our great state.

Now we have another call to action:  Please take five minutes to call or write to Governor Jay Nixon and Dr. Joe Parks, Director of MO HealthNet, IMPLORING them to ensure that the proper, certified personnel (e.g., Certified Asthma Educators and home assessors) are providing the asthma education services and healthy home assessments to those who qualify in the State, and that these qualified practitioners are reimbursed accordingly for these life-saving services. Please copy and paste the email below into a letter or email, and feel free to add in your own story as it relates to the benefits of asthma education and home assessments.

Governor Nixon

Email Form: https://governor.mo.gov/get-involved/contact-the-governors-office

Phone:  573-751-3222
Address: Office of Governor Jay Nixon, P.O. Box 720, Jefferson City, MO 65102

Dr. Joe Parks

Email: Joe.Parks@dss.mo.gov

Phone:  573-751-3425

Address:  Dr. Joe Parks, MO HealthNet, 615 Howerton Court Dr., PO Box 6500 Jefferson City, MO 65102-6500

Dear Governor Nixon/Dr. Parks, 

I am writing to show my support of the "Asthma Clause," asking that the funds appropriated through HB 2011.528 are allocated to appropriate, certified practitioners to provide asthma education and home assessments to high-risk asthma patients throughout the State of Missouri.  These educational services should be available in the clinic, school, community or home settings.  Regarding home assessments, it is imperative that trained personnel are assigned and reimbursed to identify mold, pests, defective heating/air conditioning equipment and other asthma triggers in the home.  These services are both essential pieces in the comprehensive asthma management protocol.

I urge you to implement this "Asthma Clause," to ensure the funding for asthma services (education and home assessments) goes through the proper channels.

ASTHMA FACTS: 

-Effective asthma education lowers the burden of asthma AND health care costs
-Reducing indoor asthma triggers decreases asthma symptoms and the amount of medication needed to treat asthma
-Asthma-trained school nurses can help students be better breathers of their medications, be healthier and feel better about having asthma.

Thank you for your time.

Victory! Key Asthma Budget Item Signed Into Law In MO

Asthma and Allergy Foundation of America, St. Louis Chapter Celebrates Another Legislative Victory!

Contact:
Joy Krieger, AAFA-STL
314-645-2422
jkrieger@aafastl.org

Missouri Governor Jay Nixon approved a $400,000 line item in the state’s budget to provide for the provision of home assessments for asthma trigger reduction and asthma education to Medicaid high-risk children with severe asthma.  Missouri is one of a small number of states to pass legislation directly in response the Center for Medicare and Medicaid Services rule change 42 CFR 440.130(c).  This allows other practitioners, not just physicians and other licensed practitioners, to provide and be reimbursed for furnishing preventive services recommended by a physician or other licensed practitioner.

“It is estimated that Missouri will save $1,500 per patient, per year, through this measure,” said Joy Krieger, Executive Director for the Asthma and Allergy Foundation of America, St. Louis Chapter. “We believe other expected outcomes to include decreased emergency room visits, decreased school absences and fewer work days missed by parents. It is a win for our children, our communities and our state’s health system.”

This measure was a key policy initiative of the Asthma and Allergy Foundation of America, St. Louis Chapter’s Public Policy Committee.  The Committee also successfully advocated for and aided passage of legislation in 2012 to allow schools throughout Missouri to stock asthma rescue medication. It is estimated that one in 10 children has asthma in the United States, and in some areas in Missouri, that number is as high as one in five.  “AAFA Saint Louis would like to thank Governor Nixon, the Missouri legislature, the budget committees and Representative Sue Allen for their efforts and support,” said Krieger.

Call to Action! Urge Senator Blunt to extend CHIP funding in MO

Advocates and AAFA-STL Supporters, 

Funding for the Children's Health Insurance Program (CHIP) ends September of this year. Missouri's CHIP program, HealthNet for Kids, covers more than 93,000 kids in the state over the course of a year.  Without the extension of the CHIP program, over $100 million is at stake.  In a recent editorial in the St. Louis Post-Dispatch, it is reported,  "Missouri uses its CHIP money to supplement traditional Medicaid and to operate a separate health program for children. Health advocates say the children enrolled in that separate program are in danger of losing their coverage if CHIP funding expires."  Click here to read the editorial in its entirety.

**Please urge Senator Roy Blunt to support legislation which will extend this health care program for kids.  A sample letter, a visual piece representing the importance of CHIP, and Blunt's contact info are all below.  

Senator Blunt's Phone: 202.224.5721

Senator Blunt's Website:  http://www.blunt.senate.gov/public/

Sample Message:

Dear Senator Blunt:

I urge you to use your leadership role as Chair of Appropriations Subcommittee on Labor HHS to expedite legislation to extend funding of the Children’s Health Insurance Program (CHIP) before Missouri is forced to end this important children’s health care program in September.  CHIP covers more than 93,000 Missouri children over the course of a year and if Congress does not act to extend CHIP, as much as $122 million is at risk in 2016 with the loss of federal matching funds. 

Congress must act to extend funding for CHIP beyond September 30, 2015, and I hope you will do everything in your power to extend funding for this critical program.

Thank you.

Please Urge Gov. Nixon to Strengthen Asthma Care in the State of Missouri!

We Need Your Support!

We are reaching out to you with an urgent request for action. With your help and support this year, AAFA-STL was able to achieve critical funding for asthma education and assessments.

However, due to budget concerns, Governor Nixon is withholding the money, preventing children with asthma from receiving the care they need and stalling the release of critical information that would help parents manage their child's condition.  When the governor decides to release funds, his first questions is “have we gotten any calls about this issue/bill?”

This is where you come in.  As one of our supporters, we are asking for 3 minutes of your time to place one phone call into Governor Jay Nixon's office, urging him to release the funding. We know you are extremely busy, so we want to make this call as easy as possible for you.

Contact Info:  Governor's office phone # is 573-751-3222.  If you are also interested in reaching out to John Watson, Chief of Staff or Jeff Harris, Director of Public Policy, you can reach them at the same number, 573-751-3222

Talking Points:
·         I’d like to leave a message for Governor Nixon to urge him to release the asthma funding including in HB 2011 line item 5.28.
·         This $527,000 in the overall $28 Billion dollar budget is critical for children who are suffering from asthma, not to mention the amount of money saved by releasing this money is well worth the added cost in the budget
·         I understand the budget is tight, but releasing this money will save money for the state by relieving stress on our hospitals and emergency rooms.
·         Recently, the respiratory non-polio enterovirus D68 has had an alarming effect on children suffering from asthma, increasing emergency room and hospitalization visits. Without proper education to care for asthma, it is natural to turn to the emergency rooms, which is costly and is not good for the child’s quality of life.
·         Please release the asthma funding included in HB 2011 line item 5.28.
·         Thank you for listening to my concern and for passing my message along to the Governor.

It's that easy! Will you give us a few minutes of your time and let us know after you've contacted the Governor's office? 

Additional Context and Background Talking Points:
·         Just last week, Governor Nixon withheld (a previously vetoed) budget item that would save thousands and perhaps millions of Medicaid dollars for the State of Missouri (estimates indicate $300,000 - $500,000 per 100 children per year savings for Medicaid and $500,000 - $1 million per 100 children per year savings for commercial insurance).
·         This budgetary line item would implement asthma care management changes (supported by the Centers for Medicare & Medicaid) which include asthma education and healthy home assessments for many diagnosed children with asthma across our state.
·         How would this save money in the long run?  More and more studies from around the country demonstrate reduced emergency room and hospital visits when a healthy home assessment is done to identify the asthma triggers.
·         Additionally, providing asthma education outside the emergency room leads to better retention (for example, many families have no idea that their home is making their child sick).   Improving the quality of life for those who are costing the state thousands of dollars should be Missouri’s goal.  Funding these services will not only improve school attendance and reduce time spent in the emergency room, but also improve healthcare costs for Missouri.

Thank you in advance for your help and continued support of our agency's important initiatives.

-Asthma and Allergy Foundation of America, St. Louis Chapter

Big News!

We have exciting news to share! AAFA-STL recently received a generous donation of $50,000, which will help launch the healthy homes expansion component of our flagship program, Project Concern (adding 12 months of asthma education and support, along with in-home assessments for newly enrolled clients), in addition to supporting our government relations representative and advocacy work. We are thrilled and cannot wait to launch these initiatives, all in the name of improving asthma care for our clients, and beyond!

Installation Ceremony for Dr. Wedner

Through the generous support of local philanthropists Dr. Jess and Mrs. Alice Yawitz, an endowed Professorship for the Division of Allergy and Clinical Immunology at the Washington University School of Medicine was created in honor of Dr. Phillip and Mrs. Arleen Korenblat.  We are fortunate that our Board President, Dr. H. James Wedner, will be the first recipient of this distinction as Division Chair.  The Installation Ceremony took place on June 6 at Washington University.

AAFA-STL's New Website!

Welcome to our new website!  Along with the new, sleek design, we hope this website provides you with a wealth of information, and proves to be user-friendly and helpful.  Please contact us with any feedback!

Whether you are a long-time AAFA-STL supporter, a parent of a Project Concern client, a board member or a new visitor, we thank you for visiting our site!  Stay tuned for updates, regular blog posts, and some exciting new features.

Happy browsing!